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How to live with lupus



A staggering 81% of lupus patients experience fatigue that negatively affects their life and 61% of them report not feeling recharged after their sleep.

Pain and fatigue can be triggers and consequences since the symptoms can affect their sleep, therefore creating increased stress and anxiety for the patient.

Multiple studies have linked sleep quality to mental health. Therefore, there is a high chance that your sleeping habits can either cause or prolong your mental illness. A large part of improving these sleep habits lie in creating the perfect wind down routine in addition to choosing the right sleeping accessories to provide comfort.

For patients who have lupus, the disease can present itself as both a physical and psychiatric condition. While lupus can affect the central nervous system, it has been known to also affect the brain. The effects of living with such a demanding long-term condition must not be forgotten. Emotional stress is one of the most cited triggers of lupus flare-ups while patients that have brain involvement can struggle with depression and anxiety. These can also be side effects from medications prescribed.

Considering the relationship between good sleep quality and mental health; it is important that improvement of your sleeping patterns can positively impact your mental health which itself is linked to the lupus condition. Some of the side effects such as pain, medications and psychiatric disorders can interfere with sleep quality. Not getting the recommended hours of sleep can have long-term effects such as memory loss, anxiety and depression, and fatigue.

There are so many little simple things you can try at home to try and improve your sleep. Blue light devices such as televisions, tablets, and smartphones be avoided for at least 30 minutes before bedtime. In the bedroom, efforts should be made to have a calm, relaxing atmosphere. The quality and support of your mattress and pillows also make a huge difference to the quality of your sleep.

Last but not least, try and establish a calming pre-bedtime. Choose one that is specific to your own circumstances and personality. Exercising before bed can be a great wind down tool and reduce any feelings of fatigue. However, take into account any symptom flare-ups; you should reduce or stop any exercise in these cases. If in doubt, have a conversation with your healthcare professional who will be able to pinpoint the perfect balance for your diagnosis.


This article is intended to inform and give insight but not treat, diagnose or replace the advice of a doctor. Always seek medical advice with any questions regarding a medical condition.



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